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Theses

Les espaces de la maladie d’Alzheimer : conditions de vie, hébergement et hospitalité

Abstract : Initially, the collective care of sick people suffering from Alzheimer’s disease was carried out within units dedicated to their unique behavioral characteristics. The accommodation options gradually expanded to improve their living conditions. Specialized establishments and, more recently, "innovative" projects developed that seek to promote a social and spatial integration logic.The aim of this research is to understand the link between the conditions of reception and care of sick people and the accommodation’s spatial and architectural characteristics intended for a specific population. Taking the concept of hospitality as a framework, the research is based on eight case studies: dedicated units (2), specialized EHPADs (2) and innovative projects (4). The methodology combines semi-directive interviews (42) and in-situ observations (200h). Three parts report the results of our work.The first part develops the idea that the need for collective housing adaptation to the affected people’s specificity progressively emerged under a triple pressure: that of professionals in the field; that of public policies with the implementation of Alzheimer's plans; that of gerontological institutions and their desire for change.The second part further puts in perspective the sociology of aging with spatial analysis. It provides a framework to understand the conditions in which patients are received and characterizes the hospitality in place. Hospitality appears to be controlled, within dedicated units; "autarcised" in the case of specialized EHPAD; and “included” in innovative projects.Finally, the last part crosses the patients’ residential trajectories with their living environment’s hospitality. The domestic frame of reference ends when home becomes an inhospitable. Then, the more or less anticipated transition to a collective accommodation establishment changes the reference point. This new, more adapted living environment, is nonetheless challenged by the progression of the disease.In conclusion, this thesis demonstrates the multiple tasks of architecture, operating as a grid for reading social processes; as a factor of change; as an inclusive element; and as a support for a rethought domesticity.
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Submitted on : Thursday, April 8, 2021 - 5:48:09 PM
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Manon Labarchede. Les espaces de la maladie d’Alzheimer : conditions de vie, hébergement et hospitalité. Sociologie. Université de Bordeaux, 2021. Français. ⟨NNT : 2021BORD0030⟩. ⟨tel-03193397⟩

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