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Dimension(s) numérique(s) du care à domicile en contexte de vieillissement et de maladie chronique : quelles contributions à l’institution d’un environnement socio-technique capacitant ?

Abstract : This doctoral research is part of the unique approach to care, a notion that we (re)question in the light of health information and communication technologies. Our reflection seeks to understand how and in what way a relationship of care mediated by digital and distant communication tools can claim the virtues of solicitude, proximity and shared responsibility specific to the ethics of care.Using the capabilities approach (Sen, 2010), we question in particular the resources, skills or abilities mobilized in digital care practices that focus on "caring for the other" and those that focus on "caring for oneself", in order to specify the meaning of joint action to maintain the person's autonomy and constitute an enabling intervention (Falzon, 2004). This leads us to formulate the hypothesis that the care approach, in the context of digital mediatization, results from socio-affective and socio-organizational provisions focused on digital practices of support, assistance and accompaniment. Our research includes the analysis of domestic and professional care work between subjects aged 65 to 85 years, their natural caregivers (relatives or trustworthy persons) and health professionals involved in their care at home, targeting the different health professionals (medical and paramedical). As such, we seek to characterize the actions and interactions carried out with the use of socio-technical devices in the continuum of domestic and professional care work based on the disease monitoring acts (diabetes/cancer) associated with daily life. To do this, our research is based on two case studies, each aimed at characterizing and specifying the socio-technical care environment (ESTC): one focusing on the observation of the care logics associated with the digital uses of elderly people and close carers, the other focusing on the study of professional digital practices carried out using the PAACO-Globule device as a media care instrument. The investigation methods are mainly based on direct observation and data collection, using quantitative and qualitative analysis tools focused on conducting questionnaire surveys, interviews and physical and online ethnographic studies and interviews (Barats, 2013). Our approach is mainly inductive and comprehensive. The purpose of our work is to shed light more particularly on knowledge on ethical issues, the sociology of uses related to geronologies and telehealth (Rialle, 2009) as well as the conditions of organizational and social acceptability of sociotechnical devices associated with a care approach.
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Submitted on : Thursday, October 29, 2020 - 4:17:11 PM
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Géraldine Goulinet-Fité. Dimension(s) numérique(s) du care à domicile en contexte de vieillissement et de maladie chronique : quelles contributions à l’institution d’un environnement socio-technique capacitant ?. Sciences de l'information et de la communication. Université Michel de Montaigne - Bordeaux III, 2020. Français. ⟨NNT : 2020BOR30005⟩. ⟨tel-02983315⟩

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