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Theses

Génétique : révolutions, révélations : aux sources de l'humanité et du soin

Abstract : Genetics revolutionizes research, medical practices, but also questions our relationship to life and the condition of man, especially in our relationship to time and uncertainty. The parliamentary debates and professional discussions that accompanied the law on the transmission of information to relatives in the event of a genetic disease illustrate the issues underlying the revelations of genetics for a person, for his relatives, for caregivers, for scientists and for society. Between desire to know and will to control, our existence as well as the balance of our societies in times of multiple crises, many interests converge towards genetics and its predictive character. The discovery of genetic mechanisms and the sequencing of the genome have allowed the identification of mutations and thus the end of long and painful diagnostic wanderings. Genetic tests are, in some cases, predictive, revealing a mutation responsible for the late expression of a disease. Prevention measures or monitoring can then be considered. New technologies appear to intervene on the genome itself as the "genetic scissors" Crispr-Cas9: correct mutations or improve the genome and individual performance? The revelations by genetics about the secrets of the living seem infinite. However, genetics remove other veils that make us rediscover some faces of our humanity, its mystery: by different mechanisms, it proves us the place of uncertainty in genetic information and thus the irreducibility of a human destiny to a genetic destiny. The vulnerability of our genome is source of life, of evolution, of adaptation of the living. In addition, genetics by its hereditary and familial nature, reveals that each of us, in the intimacy of this unique genome, has the mark of the other, of the others and even of humanity. These revelations lead us to renew our relationship to each other, as our relationship to care, and thus our rights and responsibilities to build the future. Praise of vulnerability as a force of unity between men and the advent of an ethic of responsibility for others through genetics
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Diane van Haecke. Génétique : révolutions, révélations : aux sources de l'humanité et du soin. Philosophie. Université Paris-Est, 2018. Français. ⟨NNT : 2018PESC2186⟩. ⟨tel-02388768⟩

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