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Le patient acteur dans la prise en charge du cancer : attentes normatives et travail du malade

Abstract : The patient actor in the management of cancer : normative expectations and patient workIn the context of a humanisation of care that enhances the figure of the individual as an actor in his or her health, this thesis questions the positioning of patients affected by cancer and their caregivers and close relatives in the care and experience of this pathology from the point of view of their "becoming actor". It highlights the disease management work done by the affected individuals, notably by analyzing how they deal with the uncertain dimensions of the experience of cancer. It also shows how the ethical considerations of the "right to information", the patient "associated with decisions" or even "at the heart of care" and the fight against cancer policy centered on "health education" contribute to bring to the foreground normative expectations that weigh on the sick. Through four stages of the disease - the discovery and announcement of cancer, the treatment period, the experience of remission and end-of-life trajectories - it more specifically examines the differences between the expected and prescribed roles and the roles effectively endorsed, the strategies of cooperation, negotiation or resistance between the actors and the elements that underpin the decision-making of the patients and their commitment to the actions they take to face cancer on a daily basis. The underlying questioning thus focuses on the actions and strategies undertaken by the actors affected in an attempt to control a trajectory of illness marked by uncertainty and how the latter integrate - or not the expectations of " the individual actor of his health and his disease ".
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Submitted on : Tuesday, November 19, 2019 - 9:51:31 AM
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Tiphaine Godfroid. Le patient acteur dans la prise en charge du cancer : attentes normatives et travail du malade. Sociologie. Université Grenoble Alpes, 2017. Français. ⟨NNT : 2017GREAH014⟩. ⟨tel-02369606⟩



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