Conception et validation d’assistants numériques de soutien à l’autodétermination pour les personnes présentant une déficience intellectuelle

Abstract : Self-determination is a universal right based on the principle of normalization (Nirje, 1972). Wehmeyer (1999) defines the concept of self-determination as the set of skills and attitudes required for individuals to act upon their lives by making free choices that are not influenced by unwanted external agents. In line with this concept, the social policies of many countries place self-determination as a central element in support for people with disabilities, especially people with intellectual disability (ID). Research shows that people with ID have self-determination, cognitive, motor, and daily functioning difficulties that do not allow them to fully participate in their lives and their communities. Assistive technologies, and in particular self-determination support technologies, offer extremely promising perspectives for people with ID, especially with regard to personal development, skills, social inclusion or community participation. In this context, the objectives of this thesis are: 1) to better understand the difficulties of self-determination of people with Down syndrome; 2) to better understand the cognitive difficulties in this population; and 3) to design, develop and validate two digital assistants for self-determination support. The results of the studies, presented in this thesis, show that self-regulation is the component of self-determination perceived as the weakest by people with Down syndrome, while autonomy and self-realization are not perceived as problematic. Furthermore, the level of self-determination is related to language, memory and motor skills. Prospective memory and decision-making abilities are deficient in adults with Down syndrome and are also related to elf-determination and self-regulation. Finally, the two digital assistants that we have designed and developed have shown their effectiveness: improvement of ideas and elements related to the life plan and home skills. Their prolonged use of these technologies has also been associated with extremely positive impact on psychological well-being, worry, self-determination and self-esteem
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Audrey Landuran. Conception et validation d’assistants numériques de soutien à l’autodétermination pour les personnes présentant une déficience intellectuelle. Psychologie. Université de Bordeaux, 2018. Français. ⟨NNT : 2018BORD0269⟩. ⟨tel-02145216⟩

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