M. Abdul-rasoul, F. Alotaibi, A. Abdulla, Z. Rahme, and F. Alshawaf, Quality of Life of Children and Adolescents with Type 1 Diabetes in Kuwait, Medical Principles and Practice, vol.22, issue.4, pp.379-384, 2013.

A. Aboab and A. Leblanc, Traverser l'adolescence avec un diabète, Enfances & Psy, vol.4, issue.57, pp.47-53, 2012.

M. Abolfotouh, M. Kamal, M. El-bourgy, and S. Mohamed, Quality of life and glycemic control in adolescents with type 1 diabetes and the impact of an education intervention, International Journal of General Medicine, issue.4, pp.141-152, 2011.

K. A-kesson, L. Hanberger, and U. Samuelsson, The influence of age, gender, insulin dose, BMI, and blood pressure on metabolic control in young patients with type 1 diabetes, Pediatric Diabetes, vol.16, issue.8, pp.581-586, 2015.

N. Al-akour, Y. Khader, and N. Shatnawi, Quality of life and associated factors among Jordanian adolescents with type 1 diabetes mellitus, Journal of Diabetes and Its Complications, vol.24, issue.1, pp.43-47, 2010.

F. Albuhairan, M. Nasim, A. Al-otaibi, N. Shaheen, S. Jaser et al., Health related quality of life and family impact of type 1 diabetes among adolescents in Saudi Arabia, Diabetes Research and Clinical Practice, vol.114, pp.173-179, 2016.

A. Hsu, Y. Chen, B. Huang, M. Lin, S. Lin et al., Distrubed eating behaviors in Taiwanese adolescents with type 1 diabetes mellitus: a comparative study, Pediatric Diabetes, vol.10, issue.1, pp.74-81, 2009.

C. Almeida, Grief Among Parents of Children With Diabetes. The Diabetes Educator, vol.21, pp.530-532, 1995.

A. Almeida, E. Leandro, and M. Pereira, The Role of Family Functioning on Metabolic Control and Quality of Life in Adolescents with Type 1 Diabetes Mellitus, Major Topics in Type 1 Diabetes, pp.137-148, 2015.

A. and P. , L'adolescent et sa « compliance » au traitement, Enfances & Psy, vol.1, issue.25, pp.46-51, 2004.

P. Alvin, R. De-tournemire, M. Anjot, and L. Vuillemin, Maladie chronique à l'adolescence : dix questions pertinentes, vol.10, pp.360-366, 2003.

P. Alvin, C. Rey, and J. Frappier, Compliance thérapeutique chez l'adolescent malade chronique, Archives de Pédiatrie, vol.2, issue.9, p.81267, 1995.

H. Alzubaidi, K. Mc-narmara, G. Kilmartin, J. Kilmartin, and J. Marriott, The relationships between illness and treatment perceptions with adherence to diabetes self-care: A comparison between Arabic-speaking migrants and Caucasian English-speaking patients. Diabetes research and clinical pratice, vol.110, pp.208-217, 2015.

G. Amarenco, B. Bayle, D. Lagauche, E. Lapeyre, and S. Sheikh-ismael, Construction et validation des échelles de qualité de vie, vol.43, pp.263-269, 2000.

, Standards of Medical Care in Diabetes, Diabetes Care, vol.35, issue.1, pp.11-63, 2012.

S. Amiel, R. Sherwin, D. Simonson, A. Lauritano, and W. Tamborlane, Impaired Insulin Action in Puberty, The New England Journal of Medicine, vol.315, issue.4, pp.215-219, 1986.

B. Anderson, Family Conflict and Diabetes Management in Youth: Clinical Lessons From Child Development and Diabetes Research, Diabetes Spectrum, vol.17, issue.1, pp.22-26, 2004.

B. Anderson, J. Miller, W. Auslander, and J. Santiago, Family Characteristics of Diabetic Adolescents: Relationship to Metabolic Control, Diabetes Care, vol.4, issue.6, pp.586-594, 1981.

B. Anderson, L. Vangness, A. Connel, D. Butler, A. Goebel-fabbri et al., Family conflict, adherence, and glycaemic control in youth with short duration Type 1 diabetes, Diabetic Medicine, vol.19, issue.8, pp.635-642, 2002.

A. Angold, E. Costello, and C. Worthman, Puberty and depression: the role of age, pubertal status and pubertal timing, Psychological Medicine, vol.28, issue.1, pp.51-61, 1998.

M. Asnani, A. Barton-gooden, M. Grindley, and J. Knight-madden, Disease Knowledge, Illness Perceptions, and Quality of Life in Adolescents With Sickle Cell Disease: Is There a Link? Global Pediatric Health, vol.4, pp.1-10, 2017.

, Séjour d'éducation thérapeutique pour les enfants qui ont un diabète et leurs parents : analyse des attentes des parents et impact sur leur qualité de vie, Diabetes & Metabolism, vol.40, issue.1, 2014.

C. B-bächle, A. Stahl-pehe, and J. Rosenbauer, Abnormal eating behaviour and eating disorders in children and adolescents with type 1 diabetes: causes and frequency, Ernaehrungs Umschau International, vol.60, issue.4, pp.58-65, 2013.

J. Bannard, Children's Concept of Illness and Bodily Function: Implication for Health Service Providers Caring for Children with Diabetes, Patient Education and Counseling, vol.9, pp.275-281, 1987.

P. Barat and C. Lévy-marchal, Épidémiologie des diabètes sucrés chez l'enfant. Archives de pédiatrie, vol.20, pp.71424-71430, 2013.

P. Barat, A. Valade, P. Brosselin, C. Alberti, S. Maurice-tison et al., The growing incidence of type 1 diabetes in children: The 17-Year French experience in Aquitaine, Diabetes & Metabolism, vol.34, issue.6, pp.601-605, 2008.

K. Barnard, S. Thomas, P. Royle, K. Noyes, and N. Waugh, Fear of hypoglycaemia in parents of young children with type 1 diabetes: a systematic review, BMC Pediatrics, vol.10, pp.50-57, 2010.

C. Barrowclough, F. Lobban, C. Hatton, and J. Quinn, An investigation of models of illness in carers of schizophrenia patients using the Illness Perception Questionnaire, British Journal of Clinical Psychology, vol.40, issue.4, pp.371-385, 2001.

K. Baucom, T. Queen, S. Turner, D. Wiebe, K. Wolfe et al., Depressive Symptoms, Daily Stress, and Adherence in Late Adolescents With Type 1 Diabetes, Health Psychology, vol.34, issue.5, pp.522-530, 2015.

M. Baudrant-boga, A. Lehmann, and B. Allenet, Penser autrement l'observance médicamenteuse : d'une posture injunctive à une alliance thérapeutique entre le patient et le soignant -Concepts et determinants, Annales Pharmaceutiques Françaises, vol.70, issue.1, pp.15-25, 2012.

B. Bauduceau, L. Bordier, O. Dupuy, C. Garcia, and H. Mayaudon, La prise en charge du diabète de type 2 : l'HbA1c reste-t-elle le seul objectif ? Médecine Nucléaire, vol.34, pp.560-563, 2010.

K. Baumstark, T. Leroy, L. Boyer, and P. Auquier, Intérêts et limites de l'évaluation de la qualité de vie dans le champ des maladies chroniques, Motricité Cérébrale : Réadaptation, Neurologie du Développement, vol.36, pp.24-30, 2015.

K. Beinke, F. O'callaghan, and S. Morrissey, Illness perceptions and psychological adjustment of mothers of young adults with cystic fibrosis, Cogent Psychology, vol.3, issue.1, pp.1-10, 2016.

Y. Benyamini, B. Medalion, and D. Garfinkel, Patient and spouse perceptions of the patient's heart disease and their associations with received and provided social support and undermining, Psychology and Health, vol.22, issue.7, pp.765-785, 2007.

C. Berg, P. King, J. Butler, P. Pham, D. Palmer et al., Parental Involvement and Adolescents' Diabetes Management: The Mediating Role of Self-Efficacy and Externalizing and Internalizing Behaviors, Journal of Pediatric Psychology, vol.36, issue.3, pp.329-339, 2011.

C. Berg, M. Skinner, K. Ko, J. Butler, D. Palmer et al., The Fit Between Stress Appraisal and Dyadic Coping in Understanding Perceived Coping Effectiveness for Adolescents With Type 1 Diabetes, Journal of Family Psychology, vol.23, issue.4, pp.521-530, 2009.

I. Bergeri, R. Michel, and J. Boutin, Pour tout savoir ou presque sur le coefficient Kappa? Médecine Tropicale, vol.62, pp.634-636, 2002.

B. Bettelheim, Pour être des parents acceptables, 1988.

R. Beveridge, C. Berg, D. Wiebe, and D. Palmer, Mother and Adolescent Representations of Illness Ownership and Stressful Events Surrounding Diabetes, Journal of Pediatric Psychology, vol.31, issue.8, pp.818-827, 2006.

R. Bibace and M. Walsh, Development of Children's Concepts of Illness, Pediatrics, vol.66, issue.6, pp.912-917, 1980.

M. Biggs, M. Basco, G. Patterson, and P. Raskin, Insulin Withholding for Weigth Control in Women With Diabetes, Diabetes Care, vol.17, issue.10, pp.1186-1189, 1994.

L. Bishay and G. Sawicki, Strategies to optimize treatment adherence in adolescent patients with cystic fibrosis. Adolescent Health, Medicine and Therapeutics, vol.7, pp.117-124, 2016.

N. Bouhours-nouet and N. Coutant, Clinique et diagnostic du diabète de l'enfant, EMCPédiatrie, vol.2, issue.3, pp.40402-40404, 2005.

E. Bouteyre and B. Loue, L'adhésion thérapeutique chez l'adolescent atteint de maladie chronique : état de la question, Archives de Pédiatrie, vol.19, issue.7, pp.747-754, 2012.

E. Bovin, M. Gignon, C. Mille, and B. Boudailliez, La non-observance thérapeutique face à une maladie au long cours à l'adolescence : conduites à risques?risques des conduites?de l'adolescent, des parents, du pédiatre? Neuropsychiatrie de l'enfance et de l'adolescence, vol.64, pp.302-307, 2016.

K. Brandes and B. Mullan, Can the common-sense model predict adherence in chronically ill patients? A meta-analysis, Health Psychology Review, vol.8, issue.2, pp.129-153, 2014.

A. Brewster, Chronically Ill Hospitalized Children's Concepts of their Illness, Pediatrics, vol.69, pp.60959-60965, 1982.

S. Brink, W. Lee, K. Pillay, and L. Kleinebreil, Le diabète de l'enfant et de l'adolescent. Manuel de formation de base à l'usage des professionnels de santé des pays en développement (1 ère édition). Danemark : Novo Nordisk, 2011.

A. Brorsson, A. Olinder, K. Wikblad, and G. Viklund, Parent's perception of their children's health, quality of life and burden of diabetes: testing reliability and validity of 'Check your Health' by proxy, Scandinavian Journal of Caring Sciences, vol.31, issue.3, pp.497-504, 2016.

C. Brousse, Réflexions sur la qualité de vie. La revue de médecine interne, vol.28, pp.441-442, 2007.

C. Brousse and B. Boisaubert, La qualité de vie et ses mesures. La revue de médecine interne, vol.28, pp.458-462, 2007.

M. Bruchon-schweitzer, Le coping et les stratégies d'ajustement face au stress, Recherche en soins infirmiers, vol.67, pp.68-83, 2001.

M. Bruchon-schweitzer, Psychologie de la santé. Modèles, concepts et méthodes, 2002.

R. Bryant-waugh, P. Cooper, C. Taylor, and B. Lask, The use of eating disorder examination with children a pilot study, International Journal of Eating Disorders, vol.19, issue.4, pp.391-397, 1996.

H. Burke and M. Dowling, Living with diabetes: Adolescents' perspectives, Journal of Diabetes Nursing, vol.11, issue.3, pp.90-96, 2007.

F. Cameron, The impact of diabetes on health-related quality of life in children and adolescents, Pediatric Diabetes, vol.4, issue.3, pp.132-136, 2003.

J. Campbell, Illness Is a Point of View: The Development of Children's Concept of Illness, Child Development, vol.46, issue.1, pp.92-100, 1975.

G. Canguilhem, Le normal et la pathologique, 1966.

L. Carbone, B. Zebrack, M. Plegue, S. Joshi, and R. Shellhaas, Treatment adherence among adolescents with epilepsy: what really matters?, Epilepsy & Behavior, vol.27, issue.1, pp.59-63, 2013.

S. Carey, Conceptual Changes in Childhood, 1985.

C. Chabrol and M. Radu, Psychologie de la communication et persuasion, 2008.

K. Chamberlain and B. Quintard, Les déterminants psychosociaux de l'ajustement au diabète, Personnalité et maladies. Stress, coping et ajustement, pp.93-112, 2001.

M. Charkaluk, P. Czernichow, and C. Lévy-marchal, Incidence Data of Childhood-Onset Type 1 Diabetes in France During 1988-1997 : The Case for a Shift Toward Younger Age at Onset, Pediatric Research, vol.52, issue.6, pp.859-862, 2002.

V. Chateaux, Perception de l'asthme par les enfants et leurs parents, impact sur la qualité de vie et l'adhérence d'enfants asthmatiques, 2005.

V. Chateaux and E. Spitz, Perception de la maladie et adhérence thérapeutique chez des enfants asthmatiques, Pratiques Psychologiques, vol.12, issue.1, pp.1-16, 2006.

B. Chew, R. Vos, M. Heijmans, S. Shariff-ghazali, A. Fernandez et al., Validity and reliability of Malay version of the brief illness perception questionnaire for patients with type 2 diabetes mellitus, BMC Medical Research Methodology, vol.17, pp.1-11, 2017.

A. Chih, C. Jan, S. Shu, and B. Lue, Self-efficacy Affects Blood Sugar Control Among Adolescents With Type I Diabetes Mellitus, Journal of the Formosan Medical Association, vol.109, issue.7, pp.60084-60092, 2010.

C. Choleau, J. Maitre, A. Filipovic-pierucci, C. Elie, P. Barat et al., Ketoacidosis at diagnostic of type 1 diabetes in French children and adolescents, Diabetes & Metabolism, vol.40, issue.2, pp.137-142, 2014.

N. Christakis and B. Davou, Représentations sociales de la santé et de la maladie chez des enfants de dix ans : quelques données et réflexions, Bulletin de Psychologie, vol.50, issue.429, pp.277-282, 1997.

, Îlôts et therapies cellulaires

M. Clements, N. Foster, D. Maahs, D. Schatz, B. Olson et al., & T1D Exchange Clinic Network, 2016.

, HbA1c) changes over time among adolescent and young adult participants in the T1D exchange clinic registry, Pediatric Diabetes, vol.1, issue.5, pp.327-336

M. Clements, M. Lind, S. Raman, S. Patton, K. Lipska et al., Age at diagnosis predicts deterioration in glycaemic control among children and adolescents with type 1 diabetes, BMJ Open Diabetes Research & Care, vol.2, issue.1, pp.1-9, 2014.

P. Colton, G. Rodin, R. Bergenstal, and C. Parkin, Eating Disorders and Diabetes: Introduction and Overview, Diabetes Spectrum, vol.22, issue.3, pp.138-142, 2009.

C. Coroir, F. Sordes-ader, and M. Jésuran-perelroizen, Jeanne et le diabète : quelle autonomie contre quelle dépendance ?, vol.49, pp.80095-80102, 2001.

L. Costa and S. Vieira, Quality of life of adolescents with type 1 diabetes, Clinics, vol.70, issue.3, pp.173-179, 2015.

, Le Diabète de type 1 : Épidémiologie -Physiopathologie -Diagnostic -Dépistage

M. Cousino, R. Hazen, S. Macleish, R. Gubitosi-klug, and L. Cuttler, Quality of life among youth with poorly controlled Type 1 diabetes: role of family conflict and sharing of treatment responsability, Diabetes Management, vol.3, issue.6, pp.449-457, 2013.

M. Craig, P. Handelsman, K. Donaghue, A. Chan, B. Blades et al., Predictors of glycaemic control and hypoglycaemi in children and adolescents with type 1 diabetes from NSW and the ACT, The Medical Journal of Australia, vol.177, issue.5, pp.235-238, 2002.

M. Craig, A. Hattersley, and K. Donaghue, Definition, epidemiology and classification of diabetes in children and adolescents, Pediatric Diabetes, vol.10, issue.12, pp.3-12, 2009.

J. Cramm, M. Strating, and A. Nieboer, The importance of general self-efficacy for the quality of life of adolescents with diabetes or juvenile rheumatoid arthritis over time: a longitudinal study among adolescents and parents, Frontiers in Pediatrics, vol.1, pp.1-8, 2013.

C. Crider, New Directions for Child Development: Children's Conceptions of Health, Illness, and Bodily Function, pp.49-65, 1981.

D. Dabelea, R. Bell, R. D'agostino, G. Imperatore, J. Johansen et al., & Group for the SEARCH for the Diabetes in Youth Study Group, JAMA, vol.297, issue.24, pp.2716-2724, 2007.

G. Dahlquist and B. Källén, Mortality in Childhood-Onset Type 1 Diabetes, Diabetes Care, vol.28, issue.10, pp.2384-2387, 2005.

C. Dashiff, Self-and Dependent-Care Responsability of Adolescents With IDDM and Their Parents, Journal of Family Nursing, vol.9, issue.2, pp.166-183, 2003.

C. Dashiff, T. Hardeman, and R. Mclain, Parent-adolescent communication and diabetes: an integrative review, Journal of Advanced Nursing, vol.62, issue.2, pp.140-162, 2008.

C. Dashiff, S. Morrison, and J. Rowe, Fathers of Children and Adolescents With Diabetes: What Do We Know?, Journal of Pediatric Nursing, vol.23, issue.2, pp.101-119, 2008.

K. Datye, D. Moore, W. Russell, and S. Jaser, A Review of Adolescent Adherence in Type 1 Diabetes and the Untapped Potential of Diabetes Providers to Improve Outcomes, Current Diabetes Reports, vol.15, issue.8, pp.51-59, 2015.

I. Debaty, M. Baudrant, P. Y. Benhamou, and S. Halimi, Évaluation de la qualité de vie en éducation thérapeutique du patient diabétique : intérêts et limites des échelles de mesure standardisées, Médecine des Maladies Métaboliques, vol.2, pp.291-293, 2008.

M. De-kerdanet, Éditorial. Diabète de type 1 de l'enfant : des chiffres et des pistes, Bulletin Épidémiologique Hebdomadaire, pp.570-571, 2017.

A. Delamater, Psychological care of children and adolescents with diabetes, Pediatric Diabetes, vol.10, issue.12, pp.175-184, 2009.

M. Dempster, N. Mccorry, and D. Howell, Illness perceptions and coping in physical heath conditions: A meta-analysis, Journal of Psychosomatic Research, vol.79, issue.6, pp.506-513, 2015.

M. Desai and J. Oppenheimer, Medication Adherence in Asthamtic Child and Adolescent, Current Allergy and Asthma Reports, vol.11, issue.6, pp.454-464, 2011.

M. Diefenbach and H. Leventhal, The Common-Sense Model of Illness Representation: Theoretical and Practical Considerations, Journal of Distress and the Homeless, vol.5, issue.1, pp.11-38, 1996.

G. Dimitraki and E. Karademas, The Association of Type 2 Diabetes Patient and Spouse Illness Representations with Their Well-being: A Dyadic Approach, International Journal of Behavioral Medicine, vol.21, issue.2, pp.230-239, 2014.

J. Dollard and N. Miller, Personality and psychotherapy, 1950.

A. Doly, La métacognition : de sa définition par la psychologie à sa mise en oeuvre à l'école, Apprendre et Comprendre. Place et rôle de la métacognition dans l'aide spécialisée, pp.84-124, 2006.

Y. Dossou, C. Roudier, A. Penfornis, A. Fagot-campagna, and C. Druet, Diabète de type 1 en France Métropolitaine : caractéristiques, risque vasculaire, fréquence des complications et qualité des soins, Bulletin Épidémiologique Hebdomadaire, pp.477-484, 2001.

D. Drozda, S. Allen, D. Standiford, A. Turner, and G. Mccain, Personal Illness Models of Diabetes: Parents of Preadolescents and Adolescents. The Diabetes Educator, vol.23, pp.550-557, 1997.

F. Duhamel, Impact de l'équilibre glycémique de la période pédiatrique du diabète de type 1 sur le risque de complications à long terme : période clef de l'adolescence (Thèse de médecine), Université Rennes, vol.1, 2014.

K. Edgar and T. Skinner, Illness Representations and Coping as Predictors of Emotional Well-Being in Adolescents with Type 1 Diabetes, Journal of Pediatric Psychology, vol.28, issue.7, pp.485-493, 2003.

C. Eiser, T. Havermans, M. Pancer, and J. R. Eiser, Adjustment to chronic disease in relation to age and gender: Mothers' and fathers' reports of their children's behavior, Journal of Pediatric Psychology, vol.17, issue.3, pp.261-275, 1992.

S. Elgandaoui, A. Lazghad, A. Chadli, H. Elghomari, and A. Farouqi, Difficulté de la prise en charge du diabète de l'adolescent, Annales d'Endocrinologie, vol.67, issue.5, p.467, 2006.

E. Emmanouilidou, A. Galli-tsinopoulou, A. Karavatos, and S. Nousia-arvanitakis, Quality of life of children and adolescents with diabetes of Northern Greek origin, Hippokratia, vol.12, issue.3, pp.168-175, 2008.

C. Epelbaum and P. Ferrari, Réactions psychologiques à la maladie chez l'enfant, Psychiatrie de l'enfant et de l'adolescent, pp.443-451, 1995.

F. Fagot-campagna, A. Romon, I. Fosse, S. Roudier, and C. , Prévalence et incidence du diabète, et mortalité liée au diabète. Synthèse épidémiologique. Institut National de Veille Sanitaire, 2010.

H. Faller, S. Schilling, and H. Lang, L'importance des théories subjectives pour la maîtrise de la maladie à la lumière des méthodes d'approche, Théories subjectives et représentations sociales, pp.34-52, 1992.

R. Fanik, Insulin manipulation and eating disorders in young people with type 1 diabetes : Implications for schools, Journal of Diabetes Nursing, vol.18, issue.6, pp.238-242, 2014.

M. Faulkner, Quality of Life for Adolescents with Type 1 Diabetes: Parental and Youth Perspectives, Pediatric Nursing, vol.29, issue.5, pp.362-368, 2003.

M. Faulkner and L. Chang, Family Influence on Self-Care, Quality of Life, and Metabolic Control in School-Age Children and Adolescents with Type 1 Diabetes, Journal of Pediatric Nursing, vol.22, issue.1, pp.59-68, 2007.

M. Faulkner and F. Clark, Quality of Life for Parents of Children and Adolescents With Type 1 Diabetes. The Diabetes Educator, vol.24, pp.721-727, 1998.

, Fe de ration des diabe tiques. (s.d.). La glycémie

R. Feltbower, J. Bodansky, C. Patterson, R. Parslow, C. Stephenson et al., Acute Complications and Drug Misuse Are Important Causes of Death for Children and Young Adults With Type 1 Diabetes, Diabetes Cares, issue.5, pp.922-926, 2008.

M. Figueiras and J. Weinman, Do similar patient and spouse perceptions of myocardial infarctus predict recovery? Psychology and Health, vol.18, pp.201-216, 2003.

G. Fisher and C. Tarquinio, Les concepts fondamentaux de la psychologie de la santé, 2006.

D. Fitzgerald, Non-compliance in adolescents with chronic lung disease: causative factors and practical approach, Paediatric Respiratory Review, vol.2, issue.3, pp.260-267, 2001.

J. H. Flavell, Metcognitive aspects of problem-solving, The nature of intelligence, pp.231-235, 1976.

E. Freckleton, L. Sharpe, and B. Mullan, The Relationship Between Maternal Fear of Hypoglycaemia and Adherence in Children with Type 1 Diabetes, International Society of Behavioral Medicine, vol.21, issue.5, pp.804-810, 2014.

D. French, V. Senior, J. Weinman, and T. Marteau, Eliciting Causal Belief about Heart Attacks: A Comparison of Implicit and Explicit Methods, Journal of Health Psychology, vol.7, issue.4, pp.433-444, 2002.

N. Fogel and J. Weissberg-benchell, Preventing Poor Psychological and Heatlh Outcomes in Pediatric Type 1 Diabetes, Current Diabetes Reports, vol.10, issue.6, pp.436-443, 2010.

D. Fonte, S. Colson, J. Côté, R. Reynaud, M. Lagouanelle-simeoni et al., Representations and experiences of well-being among diabetic adolescents: Relational, normative, and identity tensions in diabetes self-management, Journal of Health Psychology, 2017.
URL : https://hal.archives-ouvertes.fr/hal-01623032

G. Forsander, M. Bøgelund, J. Haas, and U. Samuelsson, Adolescent life with diabetesGender matters for level of distress. Experiences from the national TODS Study, Pediatric Diabetes, vol.18, issue.7, pp.651-659, 2016.

K. Fortenberry, C. Berg, P. King, T. Stump, J. Butler et al., Longitudinal Trajectories of Illness Perceptions Among Adolescents With Type 1 Diabetes, Journal of Pediatric Psychology, vol.39, issue.7, pp.687-696, 2014.

F. Fortunato, M. Cappelli, M. Vece, G. Caputi, M. Delvecchio et al., Incidence of Type 1 Diabetes among Children and Adolescents in Italy between 2009 and 2013: The Role of Regional Childhood Diabetes Registry, Journal of Diabetes Research, pp.1-7, 2016.

A. Foubert, L'estime de soi chez les enfants diabétiques, Le journal des psychologues, vol.1, issue.254, pp.33-36, 2008.

V. Gagnum, L. Stene, L. Sandvik, M. Fagerland, P. Njølstad et al., , 2015.

, All-cause mortality in a nationwide cohort of childhood-onset diabetes in Norway, Diabetologia, vol.58, issue.8, pp.1779-1786, 1973.

K. Gandhi, B. Vu, S. Esthehardi, R. Wasserman, and M. Hilliard, Adherence in adolescents with Type 1 diabetes: strategies and considerations for assessment in research and practice, Diabetes Management, vol.5, issue.6, pp.485-498, 2015.

A. Gaston, D. Cottrell, and T. Fullen, An examination of how adolescent-caregiver dyad illness representations relate to adolescents' reported diabetes self-management. Child: Care, Health and Development, vol.38, pp.513-519, 2012.

F. Girandola, Psychologie de la persuasion et de l'engagement, 2003.

C. Goh, A. Mohamed, Y. Lee, K. Loke, H. Wee et al., The associations of self-care, illness perceptions and psychological distress with metabolic control in Singaporean adolescents with Type 1 Diabetes Mellitus, Health Psychology and Behavioral Medicine, vol.4, issue.1, pp.1-14, 2016.

D. Goldston, A. Kelley, D. Reboussin, S. Daniel, J. Smith et al., Suicidal Ideation and Behavior and Noncompliance With the Medical Regiment Among Diabetic Adolescents, Journal of the American Academy of Child and Adolescent Psychiatry, vol.36, issue.11, pp.66561-66569, 1997.

C. Graindorge, Maladies somatiques dans l'enfance : la place des mots, Médecine Thérapeutique / Pédiatrie, vol.8, issue.1, pp.27-30, 2005.

M. Graue, T. Wentzel-larsen, B. R. Hanestad, B. Ba-tsvik, and O. Søvik, Measuring selfreported, health-related, quality of life in adolescents with type 1 diabetes using both generic and disease-specific instruments, Acta Paediatrica, vol.92, issue.10, pp.1190-1196, 2003.

M. Graue, T. Wentzel-larsen, B. Hanestad, and O. Søvik, Health-Related Quality of Life and Metabolic Control in Adolescents With Diabetes: The Role of Parental Care, Control, and Involvement, Journal of Pediatric Nursing, vol.20, issue.5, pp.373-382, 2005.

A. Green, E. Gale, and C. Patterson, Incidence of childhood-onset insuline-dependent diabetes mellitus: The Eurodiab Ace Study, The Lancet, vol.339, issue.11, pp.905-909, 1992.

L. Green, T. Wysocki, and B. Reineck, Fear of Hypglycemia in Children and Adolescents with Diabetes, Journal of Pediatric Psychology, vol.15, issue.5, pp.633-641, 1990.

M. Grey, E. Boland, C. Yu, S. Sullivan-bolyai, and W. Tamborlane, Personal and Family Factors Associated With Quality of Life in Adolescents With Diabetes, Diabetes Care, vol.21, issue.6, pp.909-914, 1998.

A. Grimaldi, Diabétologie. Questions d'internat 1999-2000. Faculté de Médicine Pierre et Marie Curie, 2000.

A. Grimaldi, L'éducation thérapeutique : une partie qui se joue à quatre. Cahiers de nutrition et de diététique, vol.44, pp.62-66, 2009.

A. Grimaldi, G. Slama, N. Tubiana-rufi, A. Heurtier, J. Selam et al., L'hypoglycémie du patient diabétique, Diabetes & Metabolism, vol.23, issue.1, pp.100-108, 1262.

K. Griva, L. B. Myers, and S. Newman, Illness perceptions and self efficacy beliefs in adolescents and young adults with insulin dependant diabetes mellitus, Psychology and Health, vol.15, issue.6, pp.733-750, 2000.

N. Groeben and B. Scheele, Argumente für eine Psychologie des reflexiven Subjekts, 1977.

V. Grylli, G. Wagner, A. Hafferl-gattermayer, E. Schober, and A. Karwautz, Disturbed eating attitudes, coping styles, and subjective quality of life in adolescents with Type 1 diabetes, Journal of Psychosomatic Research, vol.59, issue.2, pp.65-72, 2005.

S. Guilmin-cre-pon and N. Tubiana-rufi, L'autosurveillance glyce mique chez l'enfant et l'adolescent diabe tique de type 1, Médecine des maladies Métaboliques, vol.4, pp.70140-70141, 2010.

G. Gusto, S. Vol, C. Born, B. Balkau, J. Lamy et al., , 2011.

E. , HbA1c en fonction de l'a ge et du sexe dans une population française de sujets sans diabe te connu a ge s de 6 a 79 ans, Annales de Biologie Clinique, vol.69, issue.5, pp.545-553

M. S. Hagger and S. Orbell, A Meta-Analityc Review of the Common-Sense Model of Illness Representations, Psychology and Health, vol.18, issue.2, pp.141-184, 2003.

S. Halimi, Le « dead-in-bed » syndrome ou la « mort subite dans son lit, Médecine des maladies Métaboliques, vol.7, pp.178-184, 2013.

V. Harjutsalo, C. Forsblom, and P. Groop, Time trends in mortality in patients with type 1 diabetes: nationwide population based cohort study, British Medical Journal, vol.343, pp.1-11, 2011.

, La prise en charge du diabète de type 1 chez l'enfant et l'adolescent. Guide -Affection de longue durée, 2007.

R. Haynes, D. Taylor, and D. Sackett, Compliance in Health Care, 1979.

M. Heijmans, D. De-ridder, and J. Bensing, Dissimilarity in patients' and spouses' representations of chronic illness: exploration of relations to patients adaptation, Psychology and Health, vol.14, pp.451-466, 1999.

V. Helgeson, K. Reynolds, L. Siminerio, O. Escobar, and D. Becker, Parent and Adolescent Distribution of Responsability for Diabetes Self-care: Links to Health Outcomes, Journal of Pediatric Psychology, vol.33, issue.5, pp.497-508, 2008.

V. Helgeson, L. Siminerio, O. Escobar, and D. Becker, Predictors of Metabolic Control among Adolescents with Diabetes: A 4-Year Longitudinal Study, Journal of Pediatric Psychology, vol.34, issue.3, pp.254-270, 2009.

V. Helgeson, L. Viccario, D. Becker, O. Escobar, and L. Siminerio, Diet of Adolescents With and Without Diabetes. Trading candy for potato chips? Diabetes Care, vol.29, pp.982-987, 2006.

C. Herzlich, Santé et Maladie, Analyse d'une représentation sociale, 1969.

M. Hilliard, S. Guilfoyle, L. Dolan, and K. Hood, Prediction of Adolescents' Glycemic Control 1 Year After Diabetes-Specific Family Conflict. The Mediating Role of Blood Glucose Monitoring Adherence, Archives of Pediatrics & Adolescent Medicine, vol.165, issue.7, pp.624-629, 2011.

M. Hilliard, Y. Wu, J. Raush, L. Dolan, and K. Hood, Predictors of Deteriorations in Diabetes Management and Control in Adolescents With Type 1 Diabetes, Journal of Adolescent Health, vol.52, issue.1, pp.28-34, 2013.

H. Hoey, Autonomiser les enfants atteints de diabète et leurs parents. Diabetes Voice, vol.49, pp.25-27, 2004.

H. Hoey, H. Aanstoot, F. Chiarelli, D. Daneman, T. Danne et al., Good Metabolic Control Is Associated With Better Quality of Life in 2,101 Adolescents With Type 1 Diabetes, Diabetes Care, vol.24, issue.11, pp.1923-1928, 2001.

R. Hoffman, Adolescent Adherence in Type 1 Diabetes, Comprehensive Therapy, vol.28, issue.2, pp.128-133, 2002.

K. Hood, D. Butler, B. Anderson, and L. Laffel, Updated and Revised Diabetes Family Conflict Scale, Diabetes Care, vol.30, issue.7, pp.1764-1769, 2007.

K. Hood, S. Huestis, A. Maher, D. Butler, L. Volkening et al., Depressive Symptomes in Children and Adolescents With Type 1 Diabetes. Association with diabetes-specific characteristics, Diabetes Care, vol.29, issue.6, pp.1389-1391, 2006.

K. Hood, C. Peterson, J. Rohan, and D. Drotar, Association Between Adherence and Glycemic Control in Pediatric Type 1 Diabetes: A Meta-analysis, Pediatrics, vol.124, issue.6, pp.1171-1179, 2009.

A. Horsh, F. Mcmanus, P. Kennedy, and J. Edge, Anxiety, Depressive, and Posttraumatic Stress Symptoms in Mothers of Children With Type 1 Diabetes, Journal of Traumatic Stress, vol.20, issue.5, pp.881-891, 2007.

J. Houdan, Le père des enfants diabétiques est-il en sucre ? Le journal des psychologues, vol.234, pp.66-69, 2006.

G. Huang, M. Palta, C. Allen, T. Lecaire, and D. &-d'alessio, Self-rated Health among Young People with Type 1 Diabetes in Relation to Risk Factors in a Longitudinal Study, American Journal of Epidemiology, vol.159, issue.4, pp.364-372, 2004.

M. Huberman and M. Miles, Analyse des données qualitatives -Recueil de nouvelles méthodes, 1991.

S. Huston and C. Houk, Common Sense Model of Illness in Youth With Type 1 Diabetes or Sickle Cell Disease, The Journal of Pediatric Pharmacology and Therapeutics, vol.16, issue.4, pp.270-280, 2011.

T. Skinner, H. Hoey, H. Mcgee, and S. Skovlund, A short form of the Diabetes Quality of Life for Youth questionnaire: exploratory and confirmatory analysis in a sample of 2,077 young people with type 1 diabetes mellitus, Diabetologia, vol.49, issue.4, pp.621-628, 2006.

G. Ingersoll and D. Marrero, A Modified Quality-of-Life Measure for Youths: Psychometric. The Diabetes Educator, vol.17, pp.114-120, 1991.

, Croissance et troubles de la croissance. Grandir, une histoire d'hormones mais pas seulement, 2013.

, Information en santé. Diabète de type 2 : un trouble du métabolisme principalement lié au mode de vie, 2014.

, Information en santé. Diabète de type 1 : une maladie auto-immune de plus en plus fréquente, 2014.

, Une molécule pour régénérer les cellules produisant de l'insuline chez les diabétiques, 2016.

, Comment prendre en charge un adolescent malade chronique ? L'exemple du diabète de type 1, Médecine Thérapeutique Pédiatrie, vol.8, issue.2, pp.57-62, 2005.

P. Jacquin, Adolescence et maladie chronique : quelles vérités ?, Pour qui ? Enfance & Psy, vol.4, pp.113-121, 2011.

P. Jacquin and M. Levine, Difficultés d'observance dans les maladies chroniques à l'adolescence : comprendre pour agir. Archives de pédiatrie, vol.15, pp.89-94, 2008.

I. Janis and S. Feschbach, Effects of fear-arousing communications, The Journal of Abnormal and Social Psychology, vol.48, issue.1, pp.78-92, 1953.

S. Jaser, N. Foster, B. Nelson, J. Kittelsrud, L. Dimeglio et al., Sleep in children with type 1 diabetes and their parents in the T1D Exchange, Sleep Medecine, vol.39, pp.108-115, 2017.

J. Jones, M. Lawson, D. Daneman, M. Olmsted, and G. Rodin, Eating disorders in adolescent females with and without type 1 diabetes: cross sectional study, British Medical Journal, vol.320, pp.1563-1566, 2000.

D. Kashy and D. Kenny, The analysis of data from dyads and groups, Handbook of research methods in social psychology, pp.451-477, 1999.

E. Kalyva, E. Malakonaki, C. Eiser, and D. Mamoulakis, Health-related quality of life (HRQoL) of children with type 1 diabetes mellitus (T1DM): self and parental perceptions, Pediatric Diabetes, vol.12, issue.1, pp.34-40, 2011.

S. Kanner, V. Hamrin, and M. Grey, Depression in Adolescents With Diabetes, Journal of Child and Adolescent Psychiatric Nursing, vol.16, issue.1, pp.15-24, 2003.

M. Karvonen, M. Viik-kajander, E. Moltchanova, I. Libman, R. Laporte et al., Incidence of Childhood Type 1 Diabetes Worldwide, Diabetes Care, vol.23, issue.10, pp.1516-1526, 2000.

L. Kelly, C. Lane, M. Weigensberg, C. Toledo-corral, and M. Goran, Pubertal Changes of Insulin Sensitivity, Acute Insulin Response and ?-Cell function in Overweigth Latino Youth, The Journal of Pediatrics, vol.158, issue.3, pp.442-446, 2011.

D. Kenny, Interpersonal perception: A social relations analysis, Journal of Social and Personal Relationships, vol.5, issue.2, pp.247-261, 1988.

D. Kenny, Interpersonal Perception. A social Relations Analysis, 1994.

D. Kenny, Models of nonindependence in dyadic research, Journal of Social and Personal Relationships, vol.13, issue.2, pp.279-294, 1996.

D. Kenny and B. Depaulo, Do People Know How Others View Them? An Empirical and Theoretical Account, Psychological Bulletin, vol.114, issue.1, pp.145-161, 1993.

J. Kichler, K. Maglio, A. Kaugars, and R. Alemzadeh, Exploratory Analysis of the Relationships Among Different Methods of Assessing Adherence and Glycemic Control in Youth With Type 1 Diabetes Mellitus, Health Psychology, vol.31, issue.1, pp.35-42, 2012.

P. Kinnear and C. Gray, SPSS facile appliqué à la psychologie et aux sciences sociales, 2010.

H. Koenigsberg, E. Klausner, D. Pelino, P. Rosnick, and R. Campbell, Expressed Emotion and Glucose Control in Insulin-Dependant Diabetes Mellitus, American Journal of Psychiatry, vol.150, issue.7, pp.1114-1115, 1993.

J. Kokkonen and E. Kokkonen, Mental health and social adaptation in young adults with juvenile-onset diabetes, Nordic Journal of Psychiatry, vol.49, issue.3, pp.175-182, 1995.

M. Kovack, R. Finkelstein, T. Feinberg, M. Crouse-novack, S. Paulauskas et al., Initial psychologic responses of parents to the diagnosis of insulin-dependent diabetes mellitus in their children, Diabetes Care, vol.8, issue.6, pp.568-575, 1985.

S. Kucukarslan, A review of published studies of patients' illness perceptions and medication adherence: Lesson learned and future directions, Research in Social and Administrative Pharmacy, vol.8, issue.5, pp.371-382, 2012.

H. Kynga-s, Compliance of adolescents with chronic disease, Journal of Clinical Nursing, vol.9, issue.4, pp.549-556, 2000.

H. Kynga-s, M. Hentinen, P. Koivukangas, and A. Ohinmaa, Young diabetics' compliance in the framework of the MIMIC model, Les conséquences de l'hypoglycémie. Annales Françaises d'Anesthésie et de Réanimation, vol.24, pp.201-208, 1996.

L. Laffel, A. Connell, L. Vangness, A. Goebel-fabbri, A. Mansfield et al., General Quality of Life in Youth With Type 1 Diabetes. Relationship to patient management and diabetes-specific family conflict, Diabetes Care, vol.26, issue.11, pp.3067-3073, 2003.

R. Laing, H. Phillipson, and A. Lee, Interpersonal perception, 1964.

L. Greca and A. , Peer Influences in Pediatric Chronic Illness: An Update, Journal of Pediatric Psychology, vol.17, issue.6, pp.775-784, 1992.

L. Greca, A. Swales, T. Klemp, S. Madigan, and S. , Self care behaviors among adolescents with diabetes, Proceedings of the Ninth Annual Sessions of the Society of Behavioral Medicine, 1988.

A. Lamouroux, A. Magnan, and D. Vervloet, Compliance, observance ou adhésion thérapeutique : de quoi parlons-nous ?, Revue des Maladies Respiratoires, vol.22, pp.31-34, 2005.

B. Lancaster, K. Holman, D. Gadaire, and L. Leblanc, Association Between Diabetes Treatment Adherence and Parent-Child Agreement Regarding Treatment Responsabilities. Families, Systemes, & Health, vol.33, pp.120-125, 2015.

A. Lansing, S. Turner, P. Osborn, J. Winnick, K. Taheri et al., Academic achievement and metabolic control in adolescents with type 1 diabetes. Children's Health Care, vol.47, pp.16-33, 2017.

F. Laplantine, Anthropologie de la maladie, 1993.

E. Larger, Hyperglycémie et angiogenèse, Médecine/Sciences, vol.19, issue.8-9, pp.840-846, 2003.

A. Larrañaga, M. Docet, and R. García-mayor, Disordered eating behaviors in type 1 diabetic patients, World Journal of Diabetes, vol.2, issue.11, pp.189-195, 2011.

V. Lassman-vague, S. Clavel, B. Guerci, H. Hanaire, R. Leroy et al., When to treat a diabetic patient using an external insulin pump. Expert consensus. Socie te francophone du diabe te (ex ALFEDIAM), Diabetes & Metabolism, vol.36, issue.1, pp.79-85, 2009.

N. Lavenne, Les enjeux psychiques du diabète insulino-dépendant à l'adolescence. Droit, Santé et Société, vol.1, issue.1, pp.26-41, 2016.

G. U. Law, Dissimilarity in adolescent and maternal representations of type 1 diabetes: exploration of relations to adolescent well-being. Child: Care, Health and Development, vol.28, pp.369-378, 2002.

G. U. Law, T. Kelly, D. Huey, and C. Summerbell, Self-Management and Well-being in Adolescents With Diabetes Mellitus: Do Illness Representations Play a Regulatory Role, Journal of Adolescent Health, vol.31, issue.4, p.397, 2002.

G. U. Law, C. S. Tolgyesi, and R. Howard, Illness beliefs and self-management in children and young people with chronic illness: a systematic review, Health Psychology Review, vol.8, issue.3, pp.362-380, 2014.

T. Lawes, V. Franklin, and G. Farmer, HbA1c tracking and bio-psychosocial determinants of glycaemic control in children and adolescents with type 1 diabetes: retrospective cohort study and multilevel analysis, Pediatric Diabetes, vol.15, issue.5, pp.372-383, 2014.

J. Lawrence, D. Standiford, B. Loots, G. Klingensmith, D. Williams et al., & for the SEARCH for Diabetes in Youth Study, 2006.

, Prevalance and Correlates of Depressed Mood Among Youth With Diabetes: The SEARCH for Diabetes in Youth Study, Pediatrics, vol.117, issue.4, pp.1348-1358

J. Lawrence, J. Yi-frazier, M. Black, A. Anderson, K. Hood et al., Demographic and Clinical Correlates of Diabetes-Related Quality of Life among Youth with Type 1 Diabetes, Journal of Pediatrics, vol.161, issue.2, pp.201-207, 2012.

R. Lazarus and S. Folkman, Stress, appraisal and coping, 1984.

A. Leplège, De la santé perceptuelle à la qualité de vie : évolution conceptuelle et enjeux épistémologiques, La qualité de vie. Approches psychologiques, pp.15-23, 2013.

L. Tallec, C. De-barros-auba, and N. , Annonce diagnostic d'un diabète de type I en pédiatrie : quels enjeux ?, Annales d'Endocrinologie, vol.73, issue.4, pp.246-247, 2012.

H. Leventhal, Findings and theory in the study of fear communications, Advances in Experimental Social Psychology, vol.5, issue.08, p.60091, 1970.

H. Leventhal, Y. Benyamini, S. Brownlee, M. Diefenbach, E. Leventhal et al., Illness Representations: Theoretical Foundations, Perception of Health & Illness, pp.19-45, 1997.

H. Leventhal, D. Meyer, and D. R. Nerenz, The Common Sense Representation of Ilness Danger, Medical Psychology, vol.2, pp.7-30, 1980.

H. Leventhal, D. R. Nerenz, and D. J. Steele, Illness representation and coping with health threats, Handbook of Psychology and Health, pp.219-252, 1984.

C. Lévy-marchal, A. Fagot-campagna, and M. Daniel, Rapport thématique : maladies chroniques et traumatismes. Surveillance épidémiologique du diabète de l'enfant. Institut Nationale de la Santé et de la Recherche Médicale, 2007.

C. Lévy-marchal, C. Patterson, and A. Green, Geographical variation of presentation at diagnosis of type 1 diabetes in children: The EURODIAB Study, European and Diabetes. Diabetologia, vol.44, issue.3, pp.75-80, 2001.

C. Lévy-marchal, L. Papoz, C. De-beaufort, J. Doutreix, V. Froment et al., Clinical and Laboratory Features of Type 1 Diabetic Children at the Time of Diagnosis, Diabetic Medicine, vol.9, issue.3, pp.279-283, 1992.

A. Lewin, A. Heidgerken, G. Geffken, L. Williams, E. Storch et al., The Relation Between Family Factors and Metabolic Control: The Role of Diabetes Adherence, Journal of Pediatric Psychology, vol.31, issue.2, pp.174-183, 2006.

P. Ley, K. Jain, and C. Skilbeck, A method for decreasing patients' medication errors, Psychological Medicine, vol.6, issue.4, pp.599-601, 1976.

A. Liberman, B. Buckingham, and M. Phillip, Diabetes Technology and the Human Factor, Diabetes Technology & Therapeutics, vol.16, issue.S1, pp.110-118, 2014.

L. Lichtenberger-geslin, B. Boudailliez, K. Braun, V. Bach, A. Mercier et al., La pompe à insuline améliore-t-elle la qualité de vie et la satisfaction des enfants et adolescents diabétiques de type 1 ? Archives de Pédiatrie, vol.20, pp.248-256, 2013.

K. Locke and G. Mitchell, Self-perceptions, parent-perceptions, and meta-perceptions of the interpersonal efficacy of adolescents with autism spectrum disorder, Research in Autism Spectrum Disorders, vol.31, pp.19-29, 2016.

L. Loumé, Diabète : à quand un pancréas artificiel en France, Sciences et Avenir. Repéré, 2017.

F. Malerbi, C. Negrato, and M. Gomes, Assessment of psychosocial variables by parents of youth with type 1 diabetes mellitus, 2012.

, Diabetology & Metabolic Syndrome, vol.4, issue.1, pp.48-57

E. Mannucci, F. Rotella, V. Ricca, S. Moretti, G. Placidi et al., Eating disorders in patients with Type 1 diabetes: A meta-analysis, Journal of Endocrinological Investigation, vol.28, issue.5, pp.417-419, 2005.

J. E. Marcia, Identity in Adolescence, Handbook of Adolescent Psychology, pp.159-187, 1980.

G. Marioni, Le « travail du mal » chez l'enfant atteint d'une maladie somatique. Neuropsychiatrie de l'enfance et de l'adolescence, vol.56, pp.44-47, 2008.

D. Marrero, J. Guare, J. Vandagriff, and N. Fineberg, Fear of Hypoglycemia in Parents of Children and Adolescents With Diabetes: Maladaptive or Healthy Response? The Diabetes Educator, vol.23, pp.281-286, 1997.

F. Marty, Adolescence et e motion, une affaire de corps, Enfances & Psy, vol.4, issue.49, pp.40-52, 2010.

S. Matuchet-vincent, À quoi sert l'évaluation 360 degrés ? Élaboration et accompagnement de cet outil chez, 2005.

V. Matziou, K. Tsoumakas, E. Vlahioti, L. Chrysicopoulou, P. Galanis et al., Factors influencing the quality of life of young patients with diabetes, Journal of Diabetes, vol.3, issue.1, pp.82-90, 2011.

V. Matziou, E. Vlachioti, E. Megapanou, A. Ntoumou, C. Dionisakopoulou et al., Perceptions of children and their parents about the pain experienced during their hospitalization and its impact on parents' quality of life, Japanese Journal of Clinical Oncology, vol.46, issue.9, pp.862-870, 2016.

F. Mauny, M. Grandmottet, C. Lestradet, J. Guitard, D. Crenn et al., Increasing trend of childhood Type 1 diabetes in, European Journal of Epidemiology, vol.20, issue.4, pp.325-329, 2005.
URL : https://hal.archives-ouvertes.fr/hal-00453117

J. May, Fathers: the forgotten parent, 1996.

, Pediatric Nursing, vol.22, issue.3, pp.243-246

M. Mcgrady, J. Peugh, and K. Hood, Illness representations predict adherence in adolescence and young adults with type 1 diabetes, Psychology & Health, vol.29, issue.9, pp.985-998, 2014.

J. Mc-sharry, R. Moss-morris, and T. Kendrick, Illness perceptions and glycaemic control in diabetes: a systematic review with meta-analysis, Diabetic Medicine, vol.28, issue.11, pp.1300-1310, 2011.

V. Miller and D. Drotar, Decision-Making Competence and Adherence to Treatment in Adolescents with Diabetes, Journal of Pediatric Psychology, vol.32, issue.2, pp.178-188, 2007.

S. Mitchell, M. Hilliard, L. Mednick, C. Henderson, F. Cogen et al., Stress among Fathers of Young Children with Type 1 Diabetes. Families, Systemes, & Health, vol.27, pp.314-324, 2009.

I. Moley-massol, Le malade, la maladie et les proches, L'Archipel, 2009.

E. Monazea, S. Talha, E. El-shereef, A. El-megeed, H. Eltony et al., Quality of Life Among Adolescents with Type 1 Diabetes Mellitus in Assiut, The Medical Journal of Cairo University, vol.80, issue.1, pp.261-270, 2012.

S. Moore, N. Hackworth, V. Hamilton, E. Northam, and F. Cameron, Adolescents with Type 1 Diabetes: parental perceptions of child health and family functioning and their relationship to adolescent metabolic control, Health and Quality of Life Outcomes, vol.11, issue.1, pp.50-57, 2013.

H. Moreira, R. Frontini, M. Bullinger, and M. Canavarro, Caring for a Child With Type 1 Diabetes: Links Between Family Cohesion, Perceived Impact, and Parental Adjustment, Journal of Family Psychology, vol.27, issue.5, pp.731-742, 2013.

H. Moreira, R. Frontini, M. Bullinger, and M. C. Canavarro, Family Cohesion and HealthRelated Quality of Life of Children with Type 1 Diabetes: The Mediating Role of Parental Adjustement, Journal of Child and Family Studies, vol.23, issue.2, pp.347-359, 2014.

E. Morgan, R. Black, N. Abid, C. Cardwell, D. Mccance et al., Mortality in type 1 diabetes diagnosed in childhood in Northern Ireland during 1989-2012: A population based-cohort study, Pediatric Diabetes, vol.19, issue.1, pp.166-170, 2018.

H. Mortensen and P. Hougaard, Comparison of metabolic control in a cross-sectional study of 2873 children and adolescents with IDDM from 18 countries, Diabetes Care, vol.20, issue.5, pp.714-720, 1997.

R. Moss-morris, J. Weinman, K. Petrie, R. Horne, L. Cameron et al., The Revised Illness Perception Questionnaire (IPQ-R), Psychology and Health, vol.17, issue.1, pp.1-16, 2002.

N. Munzenberger, M. Souville, M. Morin, and J. Moatti, Approche psychosociale de l'observance the rapeutique et de l'adhe rence aux essais cliniques chez les patients infecte s par le VIH, 1996.

K. Nadeau and D. Dabelea, Epidemiology of Type 2 Diabetes in Children and Adolescents, Endocrine Research, vol.33, issue.1-2, pp.35-58, 2008.

L. Nardi, S. Zucchini, F. D'alberton, S. Salardi, G. Maltoni et al., Quality of life, psychological adjustment and metabolic control in youths with type 1 diabetes: a study with self-and parents-report questionnaires, Pediatric Diabetes, vol.9, issue.5, pp.496-503, 2008.

M. Naughton, J. Yi-fraser, T. Morgan, M. Seid, J. Lawrence et al., Longitudinal Associations between Sex, Diabetes SelfCare, and Health-Related Quality of Life among Youth with Type 1 or Type 2 Diabetes Mellitus, The Journal of Pediatrics, vol.164, issue.6, pp.1376-1383, 2014.

D. Neumark-sztainer, J. Patterson, A. Mellin, D. Ackard, J. Utter et al., Weight Control Pratices and Disordered Eating Behaviors Among Adolescent Females and Males With Type 1 Diabetes. Associations with sociodemographics, weight concerns, familial factors, and metabolic outcomes, Diabetes Care, vol.25, issue.8, pp.1289-1296, 2002.

L. Niba, B. Aulinger, W. Mbacham, and K. Parhofer, Predictors of glucose control in children and adolescents with type 1 diabetes: results of cross-sectional study in Cameroun, BMC Research Notes, vol.10, pp.207-216, 2017.

G. Ninot, La qualité de vie liée à la santé dans les maladies chroniques, La qualité de vie. Approches psychologiques, pp.117-137, 2013.

S. Nordfeldt and J. Ludvigsson, Fear and Other Disturbancies of Severe Hypoglycaemia in Children and Adolescents with Type 1 Diabetes Mellitus, Journal of Pediatric Endocrinology & Metabolism, vol.18, issue.1, pp.83-91, 2005.

T. Novato and S. Grossi, Factors associated to the quality of life of adolescents with type 1 diabetes mellitus, Revista da Escola de Enfermagem, vol.45, issue.3, pp.766-772, 2011.

J. Ogden, La psychologie de la santé, 2008.

J. ;. Olsen, B. Berg, C. Wiebe, and D. , Perception du diabète de type 1 auto-et hétéro-évaluée par les adolescents et leurs parents : analyse des liens avec leur qualité de vie, la gestion familiale de la maladie, Psychology and Health, vol.23, issue.1, pp.113-129, 2008.

D. Olson, J. Tiesel, and D. Gorall, Family Adaptability and Cohesion Evaluation Scale IV, 1996.

, Working Group. Definition of the Quality of life, Gene ve : WHO, 1994.

, Centre des médias : Diabète. Aide mémoire n° 312, 2017.

, Programmes et projets : Santé de l'adolescent. Développement des adolescents

, Organisation Mondiale de la Sante . (s.d.). Mieux connaître le diabète : Les complications

N. Özyazicio?lu, E. Ü. Avdal, and H. Sa?lam, A determination of the quality of life of children and adolescents with type 1 diabetes and their parents, International Jounral of Nursing Sciences, vol.4, issue.2, pp.94-98, 2017.

C. Paschalides, A. J. Wearden, R. Dunkerley, C. Bundy, R. Davies et al., The associations of anxiety, depression and personal illness representations with glycaemic control and health-related quality of life in patients with type 2 diabetes mellitus, Journal of Psychosomatic Research, vol.57, issue.6, pp.557-564, 2004.

C. Panagiotopoulos, M. Riddell, and E. Sellers, Le diabe te de type 2 chez les enfants et les adolescents, Canadian Journal of Diabetes, vol.37, issue.5, pp.542-547, 2013.

A. Patiño-fernández, M. Eidson, J. Sanchez, and A. Delamater, What do Youth with Type 1 Diabetes Know about the HbA1c Test? Children's Health Care, vol.38, pp.157-167, 2010.

C. Patterson, G. Dahlquist, V. Harjutsalo, G. Joner, R. Feltbower et al., Early mortality in EURODIAB population-based cohorts of type 1 diabetes diagnosed in childhood since 1989, Diabetologia, vol.50, issue.12, pp.2439-2442, 2007.

S. Patton, Adherence to Diet in Youth with Type 1 Diabetes, Journal of the AMERICAN DIETETIC ASSOCIATION, vol.111, pp.550-555, 2011.

F. Pattou, Développement de la greffe d'îlots de Langerhans, Le Courrier de la Transplantation, issue.3, pp.121-122, 2010.

R. Pauzé and J. Petitpas, Évaluation du fonctionnement familial : État des connaissances, 2013.

&. Médecine and . Hygiène, , vol.34, pp.11-37

J. Pedinielli, Les théories étiologiques des malades, Psychologie Française, vol.41, pp.137-145, 1996.

J. Pedinielli, Les « Théories » personnelles des patients. Pratiques Psychologiques, vol.4, pp.53-62, 1999.

M. Pereira, A. Almeida, L. Rocha, and E. Leandro, Predictors of Adherence, Metabolic Control and Quality of Life in Adolescents with Type 1 Diabetes, Type 1 Diabetes -Complications, Pathogenesis, and Alternative Treatments, pp.119-140, 2011.

M. Pereira, L. Berg-cross, P. Almeida, and C. Machado, Impact of Family Environnement and Support on Adherence, Metabolic Control, and Quality of Life in Adolescents with Diabetes, International Journal of Behavioral Medicine, vol.15, issue.3, pp.187-193, 2008.

J. Perrin, W. Maclean, and E. Perrin, Parental Perceptions of Health Statuts and Psychologic Adjustement of Children With Asthma, Pediatrics, vol.83, issue.1, pp.26-30, 1989.

D. Perwitasari, S. Santosa, I. Faridah, and A. Kaptein, Illness Perceptions and Quality of Life in Patients with Diabetes Mellitus Type 2, Jurnal Farmasi Klinik Indonesia, vol.6, issue.3, pp.190-199, 2017.

D. Petitti, G. Klingensmith, R. Bell, J. Andrews, D. Dabela et al., Glycemic Control in Youth with Diabetes: The SEARCH for Diabetes in Youth Study, The Journal of Pediatrics, vol.155, issue.5, pp.668-672, 2009.

S. Philippi, M. Cardoso, P. Koritar, and M. Alvarenga, Risk behaviors for eating disorder in adolescents and adults with type 1 diabetes, Revista Brasileira de Pisquiatria, vol.35, issue.2, pp.150-156, 2013.

J. Pickup and H. Keen, Continuous Subcutaneous Insulin Infusion at 25 Years. Evidence base for the expanding us of insulin pump therapy in type 1 diabetes, Diabetes Care, vol.25, issue.3, pp.593-598, 2002.

C. Piffaretti, L. Mandereau-bruno, S. Guilmin-crepon, C. Choleau, A. Fagot-campagna et al., Évolution de l'incidence du diabète de type 1 chez l'enfant en France, Diabetes & Metabolism, vol.43, issue.2, pp.30146-30151, 2010.

C. Piffaretti, L. Mandereau-bruno, S. Guilmin-crepon, C. Choleau, R. Coutant et al., Incidence du diabète de type 1 chez l'enfant en France en 2013-2015, à partir du Système National des Données de Santé (SNDS). Variations régionales, Bulletin Épidémiologique Hebdomadaire, pp.571-578, 2017.

O. Pinhas-hamiel, U. Hamiel, V. Boyko, C. Graph-barel, B. Reichman et al., Trajectories of HbA1c Levels in Children and Youth with Type 1 Diabetes, PLoS ONE, vol.9, issue.10, pp.1-7, 2014.

T. Podar, A. Solntsev, A. Reunanen, B. Urbonaite, R. Zalinkevicius et al., Mortality in Patients with Childhood-Onset Type 1 Diabetes in Finland, Estonia, and Lithuania, Diabetes Care, vol.23, issue.3, pp.290-294, 2000.

E. R-racicka and A. Bry?ska, Eating Disorders in children and adolescents with type 1 and type 2 diabetes -prevalence, risk factors, warning signs, Psychatria Polska, vol.49, issue.5, pp.1017-1024, 2015.

J. Rausch, K. Hood, A. Delamater, J. Pendley, J. Rohan et al., Changes in Treatment Adherence and Glycemic Control During the Transition to Adolescence in Type 1 Diabetes, Diabetes Care, vol.35, issue.6, pp.1219-1224, 2012.

G. Reach, Observance à l'adolescence. Médecine des maladies Métaboliques, vol.11, pp.30157-30165, 2017.

K. Rechenberg, M. Grey, and L. Sadler, Stress and Posttraumatic Stress in Mothers of Children With Type 1 Diabetes, Journal of Family Nursing, vol.23, issue.2, pp.201-225, 2017.

K. Rechenberg, R. Whittemore, M. Holland, and M. Grey, General and diabetes-specific stress in adolescents with type 1 diabetes, Diabetes Research and Clinical Practice, vol.130, pp.1-8, 2017.

E. Renard, Les pompes portables pour la perfusion sous-cutanée d'insuline, Sang Thrombose Vaisseaux, vol.19, issue.3, pp.161-167, 2007.

H. Richards, D. Fortune, S. Chong, D. Mason, S. Sweeney et al., Divergent Beliefs About Psoriasis are Associated with Increased Psychological Distress, Journal of Investigative Dermatology, vol.123, issue.1, pp.49-56, 2004.

I. Rizou, V. De-gucht, A. Papavasiliou, and S. Maes, Illness perceptions determine psychological distress and quality of life in youngsters with epilepsy, Epilepsy & Behavior, vol.46, pp.144-150, 2015.

J. Robert, Diabète insulino-dépendant de l'enfant et de l'adolescent, Journal de pédiatrie et de puériculture, vol.12, issue.5, pp.80147-80156, 1999.

J. Robert and C. Choleau, Prévenir l'acidocétose au moment du diagnostic du diabète de type 1 chez l'enfant et l'adolescent, vol.9, pp.643-648, 2015.

M. Rodier, Le diabète de type 1. Médecine Nucléaire -Imagerie fonctionnelle et métabolique, vol.25, pp.91-93, 2001.

G. Rodin and D. Daneman, Eating Disorders and IDDM. A problematic association, Diabetes Care, vol.15, issue.10, pp.1402-1412, 1992.

I. Romon, G. Rey, E. Jougla, E. Eschwege, A. Weill et al., Surmortalité entre 2001 et 2006 dans la cohorte diabétique ENTRED, Diabetes & Metabolism, vol.36, issue.1, pp.70075-70081, 2010.

S. Rouget, Lorsque la maladie chronique rencontre l'adolescence, Enfance & Psy, vol.3, issue.64, pp.45-56, 2014.

T. Rybak, J. Ali, K. Berlin, K. Klages, G. Banks et al., Patterns of Family Functioning and Diabetes-Specific Conflict in Relation to Glycemic Control and Health-Related Quality of Life Among Youth With Type 1 Diabetes, Journal of Pediatric Psychology, vol.42, issue.1, pp.40-51, 2017.

D. Rubovits and A. Siegel, Developing Conceptions of Chronic Disease: A Comparison of Disease Experience. Children's Health Care, vol.23, pp.267-285, 1994.

Y. Sabri, A. Sharkawy, S. Farrag, and H. Boraie, Quality of life and self-esteem of children and adolescents with type 1 diabetes, Egyptian Journal of Psychiatry, vol.35, issue.3, pp.173-178, 2014.

L. Saint-pierre, La métacognition, qu'en est-il ? Revue des sciences de l'éducation, pp.529-545, 1994.

C. Salewski, Illness Representations in Families with a Chronically Ill Adolescent: Differences between Family Members and Impact on Patients' Outcome Variables, Journal of Health Psychology, vol.8, issue.5, pp.587-598, 2003.

Á. Salvador, C. Crespo, A. Martins, S. Santos, and M. Canavarro, Parents' Perceptions About Their Child's Illness in Pediatric Cancer: Links with Caregiving Burden and Quality of Life, Journal of Child and Family Studies, vol.24, issue.4, pp.1129-1140, 2015.

N. Sanyal, S. Jiwani, and T. Fernandes, Illness perceptions and Coping as Predictors of Quality of Life in Adolescents with Beta Thalassemia, IOSR Journal Of Humanities And Social Science, vol.22, issue.7, pp.18-30, 2017.

K. Savin, E. Hamburger, A. Monzon, N. Patel, K. Perez et al., Diabetesspecific family conflict: Informant discrepancies and the impact of parental factors, Journal of Family Psychology, vol.32, issue.1, pp.157-163, 2018.

A. Searle, P. Norman, R. Thompson, and K. Vedhara, Illness representations among patients with type 2 diabetes and their partners: Relationships with self-management behaviors, Journal of Psychosomatic Research, vol.63, issue.2, pp.175-184, 2007.

A. Secrest, D. Becker, S. Kesley, R. Laporte, and T. Orchad, All-cause mortality trends in a large population-based cohort with long-standing childhood-onset type 1 diabetes, Diabetes Care, vol.33, issue.12, pp.2573-2579, 2010.

B. Senez, P. Felicioli, A. Moreau, and M. Le-goaziou, Évaluation de la qualité de vie des patients diabétiques de types 2 en médecine générale, La Presse Médicale, vol.33, issue.3, pp.161-166, 2004.

C. Sigelman, A. Maddock, J. Epstein, and W. Carpenter, Age Differences in Understandings of Disease Causality: AIDS, Colds, and Cancer, Child Development, vol.64, issue.1, pp.272-284, 1993.

T. Skinner and S. Hampson, Personal Models of Diabetes in Relation to Self-Care, WellBeing, and Glycemic Control. A prospective study in adolescence, Diabetes Care, vol.24, issue.5, pp.828-833, 2001.

T. Skrivarhaug, H. Bangstad, L. Sandvik, K. Hanssen, and G. Joner, Long-term mortality in a nationwide cohort of childhood-onset type 1 diabetic patients in Norway, Diabetologia, vol.49, issue.2, pp.298-305, 2006.

A. Smaldone and M. Ritholz, Perceptions of Parenting Children With Type 1 Diabetes Diagnosed in Early Childhood, Journal of Pediatric Health Care, vol.25, issue.2, pp.87-95, 2011.

G. Soltesz, C. Patterson, and G. Dahlquist, Worldwide childhood type 1 diabetes incidence -what can we learn from epidemiology? Pediatric Diabetes, vol.8, pp.6-14, 2007.

E. Spitz, La douleur : aspects psychiques et traitement, Traité de psychologie de la santé, pp.245-259, 2002.

P. Standen, F. Hinde, and P. Lee, Family involvement and metabolic control of childhood diabetes, Diabetic Medicine, vol.2, issue.2, pp.137-140, 1985.

D. Standiford, A. Turner, S. Allen, D. Drozda, and G. Mccain, Personal Illness Models of Diabetes: Preadolescents and Adolescents. The Diabetes Educator, vol.23, pp.147-151, 1997.

A. Steck, T. Bugawan, A. M. Valdes, L. Emery, A. Blair et al., Association of Non-HLA Genes With Type 1, 2005.

, Diabetes Autoimmunity. Diabetes, vol.54, issue.8, pp.2482-2486

R. Stein and D. Jessop, The impact on Family Scale revisited: Furthrer psychometric data, Journal of Developmental and Behavioral Pediatrics, vol.24, issue.1, pp.9-16, 2003.

K. Sterba and R. Devellis, Developing a spouse version of the Illness Perception Questionnaire-Revised (IPQ-R) for husbands of women with rheumatoid arthritis, Psychology & Health, vol.24, issue.4, pp.473-487, 2009.

K. Sterba, R. Devellis, M. Lewis, B. Devellis, J. Jordan et al., Effect of couple illness perception congruence on psychological in women with rheumatoid arthritis, Health Psychology, vol.27, issue.2, pp.221-229, 2008.

J. Stiglitz, A. Sen, and J. Fitoussi, Rapport de la commission sur la mesure des performances économiques et du progrès social, 2009.

R. Streisand, E. Mackey, and W. Herge, Associations of Parent Coping, Stress, and WellBeing in Mothers of Children with Diabetes: Examination of Data from a National Sample, Maternal and Child Health Journal, vol.14, issue.4, pp.612-617, 2010.

R. Striegel-moore, Psychological factors in the etiology of binge eating, Addictive Behaviors, vol.20, issue.6, pp.94-95, 1995.

S. Sullivan-bolyai, J. Deatrick, P. Gruppuso, W. Tamborlane, and M. Grey, Constant Vigilance: Mothers' Work Parenting Young Children With Type 1 Diabetes, Journal of Pediatric Nursing, vol.18, issue.1, pp.21-29, 2003.

C. Tarquinio and M. Tarquinio, L'observance the rapeutique : de terminants et mode les the oriques. Pratiques psychologiques, vol.13, pp.1-19, 2007.

R. Tattersall and G. Gill, Unexplained deaths of type 1 diabetic patients, Diabetic Medicine, vol.8, issue.1, pp.49-58, 1991.

J. Terrasson, F. Terrade, A. Somat, S. Nivot-adamiak, M. Guitteny et al., Association between quality of life of adolescents with type 1 diabetes and parents illness perception as evaluated by adolescents, Health & Medicine, vol.23, issue.3, pp.347-359, 2018.
URL : https://hal.archives-ouvertes.fr/hal-01880377

S. Tessier, A. Vuillemin, J. Lemelle, and S. Briançon, Propriétés psychométriques du questionnaire générique français "Pediatric Quality of Life Inventory Version 4.0, vol.59, pp.291-300, 2009.

, The Effect of Intensive Treatment of Diabetes on the Development and Progression of Long-Term Complications in Insulin-Dependent Diabetes Mellitus, The Diabetes Control and Complications Trial Research Group, vol.329, pp.977-986, 1993.

, Incidence and trends of childhood Type 1 diabetes worldwide 1990-1999, The DIAMOND Project Group, vol.23, issue.8, pp.857-866, 2006.

E. The and . Group, Family Risk of Type 1 diabetes in European Children, The EURODIAB ACE Substudy 2 Study Group, vol.41, pp.1151-1156, 1998.

, Infections and vaccinations as risk factors for childhood Type 1 (insulin-dependent) diabetes mellitus: a multicentre case-control investigation, The EURODIAB Substudy 2 Study Group, vol.43, pp.47-53, 2000.

E. Tsiouli, E. Alexopoulos, C. Stefanaki, C. Darviri, and G. Chrousos, Effets du stress familial lié au diabète sur le contrôle glycémique chez les jeunes diabétiques de type 1, 2013.

, Le Médecin de famille canadien, vol.59, pp.75-82

J. Turner, Children with Chronic Illness, Medical Update for Psychiatrics, vol.3, issue.2, pp.45-48, 1998.

T. Urakami, J. Suzuki, A. Yoshida, H. Saito, M. Ishige et al., Association between Sex, Age, Insulin Regimens and Glycemic Control in Children and Adolescents with Type 1 Diabetes, Clinical Pediatric Endocrinology, vol.19, issue.1, pp.1-6, 2010.

S. Urbach, S. Lafranchi, L. Lambert, J. Lapidus, D. Daneman et al., Predictors of glucose control in children and adolescents with type 1 diabetes mellitus, Pediatric Diabetes, vol.6, issue.2, pp.69-74, 2005.

J. Usher-smith, M. Thompson, S. Sharp, and F. Walter, Factors associated with the presence of diabetic ketoacidosis at diagnosis of diabetes in children and young adults: a systematic review, British Medical Journal, vol.343, pp.1-16, 2011.

J. Vandagriff, D. Marrero, G. Ingersoll, and N. Fineberg, Parents of Children With Diabetes: What Are They Worried About? The Diabetes Educator, vol.18, pp.299-302, 1992.

M. Vanelli, F. Chiarelli, G. Chiari, and S. Tumini, Relationship between metabolic control and quality of life in adolescents with type 1 diabetes, Acta Bio Medica, vol.74, issue.1, pp.13-17, 2003.

J. Varni, M. Seid, and P. Kurtin, PedsQL 4.0: reliability and validity of Pediatric Quality of Life Inventory version 4.0 generic score scales in healthy and patient populations, Medical Care, vol.39, issue.8, pp.800-812, 2001.

J. Varni, S. Sherman, T. Burwinkle, P. Dickinson, and P. Dixon, The PedsQL Family Impact Module: preliminary reliability and validity. Health and Quality of Life Outcomes, vol.2, pp.1-6, 2004.

V. Vautier, Urgences de l'enfant diabétique, Communication pre sente e au 9 e me Journe es d'Urgences Pe diatriques du, 2008.

M. Villani, C. Flahault, S. Montel, S. Sultan, and C. Bungener, Proximite des repre sentations de la maladie chez le malade et ses proches : revue de la litte rature et illustration clinique, Bulletin de psychologie, vol.6, issue.528, pp.477-487, 2013.

A. Voigt, E. Madrid, V. Pacheco-huergo, A. Rastello, D. Castro et al., Association of glycaemia with perceived threat of illness in patients with type 2 diabetes, Primary Care Diabetes, vol.9, issue.6, pp.426-431, 2015.

B. Weber, S. Brink, C. Bartsocas, and K. Staehr-johansen, ISPAD Declaration of Kos, Journal of Paediatrics and Child Health, vol.31, issue.2, p.156, 1995.

J. Weinman and M. Figueiras, Perception de la santé et de la maladie, Traité de psychologie de la santé, pp.117-133, 2002.

J. Weinman and K. Petrie, Illness Perceptions: A New Paradigm For Psychosomatics?, Journal of Psychosomatic Research, vol.42, issue.2, pp.294-296, 1997.

J. Weinman, K. Petrie, R. Moss-morris, and R. Horne, The Illness Perception Questionnaire: A New Method for Assessing the Cognitive Representation of Illness, Psychology and Health, vol.11, issue.3, pp.431-445, 1996.

J. Weinman, K. Petrie, N. Sharpe, and S. Walker, Causal attributions in patients and spouses following first-time myocardial infarction and subsequent lifestyle changes, British Journal of Health Psychology, vol.5, issue.3, pp.263-273, 2000.

J. Weissberg-benchell, J. Antisdel-lomaglio, and R. Seshadri, Insulin Pump Therapy. A meta-analysis, Diabetes Care, vol.26, issue.4, pp.1079-1087, 2003.

J. Weissberg-benchell, A. Glasgow, D. Tynan, P. Wirtz, J. Turek et al., Adolescent Diabetes Management and Mismanagement, Diabetes Care, vol.18, issue.1, pp.77-82, 1995.

J. Weissberg-benchell, T. Nansel, G. Holmbeck, R. Chen, B. Anderson et al., Generic and Dabetes-specific Parent-Child Behaviors and Quality of Life Among Youth with Type 1 Diabetes, Journal of Pediatric Psychology, vol.34, issue.9, pp.977-988, 2009.

R. Whittemore, S. Jaser, A. Chao, M. Jang, and M. Grey, Psychological Experience of Parents of Children With Type 1 Diabetes. A Systematic Mixed-Studies Review, The Diabetes Educator, vol.38, issue.4, pp.562-579, 2012.

R. Whittemore, L. Liberti, S. Jeon, A. Chao, S. Jaser et al., Self-Management as a Mediator of Family Functioning and Depressive Symptoms With Health Outcomes in Youth With Type 1 Diabetes, Western Journal of Nursing Research, vol.36, issue.9, pp.1254-1271, 2014.

D. Wiebe, C. Berg, C. Korbel, D. Palmer, R. Beveridge et al., Children's Appraisals of Maternal Involvement in Coping With Diabetes: Enhancing Our Understanding of Adherence, Metabolic Control, and Quality of Life Across Adolescence, Journal of Pediatric Psychology, vol.30, issue.2, pp.167-178, 2005.

D. Wiebe, C. Chow, D. Palmer, J. Butner, J. Butler et al., Developmental Processes Associated With Longitudinal Declines in Parental Responsability and Adherence to Type 1 Diabetes Management Across Adolescence, Journal of Pediatric Psychology, vol.39, issue.5, pp.532-541, 2014.

L. Williams, L. Laffel, and K. Hood, Education and Psychological Aspects Diabetes-specific family conflict and psychological distress in paediatric Type 1 diabetes, Diabetic Medicine, vol.26, issue.9, pp.908-914, 2009.

D. Winnicott, The Family and Individual Development, 1965.

L. Wisting, L. Bang, H. Natvig, T. Skrivarhaug, K. Dahl-jørgensen et al., Metabolic Control and Illness Perceptions in Adolescents with Type 1 Diabetes, Journal of Diabetes Research, pp.1-7, 2016.

J. Wolfsdorf, M. Craig, D. Daneman, D. Dunger, J. Edge et al., Diabetic ketoacidosis in children and adolescents with diabetes, Pediatric Diabetes, vol.10, issue.12, pp.118-133, 2009.

J. Wood, K. Miller, D. Maahs, R. Beck, L. Dimeglio et al., Most Youth With Type 1 Diabetes in the T1D Exchange Clinic Registry Do Not Meet Amercian Diabetes Association or International Society for Pediatric and Adolescent Diabetes Clinical Guidelines, Diabetes Care, vol.36, issue.7, pp.2035-2037, 2013.

T. Wysocki, Associations Among Teen-Parent Relationships, Metabolic Control, and Adjustment to Diabetes in Adolescents, Journal of Pediatric Psychology, vol.18, issue.4, pp.441-452, 1993.

T. Wysocki and L. Gavin, Paternal Involvement in the Management of Pediatric Chronic Disease: Associations with Adherence, Quality of life, and Health Status, Journal of Pediatric Psychology, vol.31, issue.5, pp.501-511, 2006.

V. Young, C. Eiser, B. Johnson, S. Brierley, T. Epton et al., Eating problems in adolescents with Type 1 diabetes: a systematic review with meta-analysis, Diabetic Medicine, vol.30, issue.2, pp.189-198, 2013.

M. Young, J. Lord, N. Patel, M. Gruhn, and S. Jaser, Good Cop, Bad Cop: Quality of Parental Involvement in Type 1 Diabetes Management in Youth, Current Diabetes Reports, vol.14, issue.11, pp.546-564, 2014.

S. Yussen, The role of metacognition in contemporary theories of cognitive development, Contemporary Research in Cognition and Metacognition, 1985.

A. Zeidel, L'enfant dans la famille : Tome 2. L'enfant devant la maladie et la mort, pp.49-53, 1974.

F. Zenasni and M. Botella, Les mesures individualiées de la qualité de vie : des théories aux outils, La qualité de vie. Approches psychologiques, pp.25-41, 2013.

. Site-de-l'oms,