Perception du diabète de type 1 auto- et hétéro-évaluée par les adolescents et leurs parents : analyse des liens avec leur qualité de vie, la gestion familiale de la maladie et le contrôle métabolique

Abstract : This thesis focuses on a population of adolescents with type 1 diabetes and their parents. It examines the influence of adolescents’ and their parents’ perceptions of type 1 diabetes, on their respective adjustments to the disease. First, we present the characteristics of type 1 diabetes, its specificities in adolescence, and two criteria used to examine adjustment to the disease : metabolic control and quality of life. After having defined the notion of illness perception and describing its influences on adjustment, the role of family members' perception is examined. A study of illness perception in the family through self- and hetero-evaluation is then presented. The two lines of research aim to highlight the existence of potential interpretations of the family members’ perceptions and analyze their influence on adjustment to the illness. The first two studies highlight the impact of type 1 diabetes' perception, both self- and hetero-evaluation, by adolescents and their parents on their adjustment. The last study reports, using a qualitative approach, the links between illness perception in the family and adolescents' quality of life, in light of family diabetes management. In conclusion, our studies provide further support the need to study the illness perception in the family through the prism of interpersonal perception and meta-perception. Finally, the limits of this work and research and applied perspectives are discussed.
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Johanna Terrasson. Perception du diabète de type 1 auto- et hétéro-évaluée par les adolescents et leurs parents : analyse des liens avec leur qualité de vie, la gestion familiale de la maladie et le contrôle métabolique. Psychologie. Université Rennes 2, 2019. Français. ⟨NNT : 2019REN20018⟩. ⟨tel-02141262⟩

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