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Les Passeurs de mots. Une éthique philosophique du soin : à propos d’une enquête nationale au sein des Centres SLA de France

Abstract : The teaching of Doctor-Patient relationship, in particular in making announcement of the diagnosis, makes progress in the Faculties of Medicine. But in practice, communicating the thruth of a disease with fatal issue remains a distressing time because still badly told. Amyotrophic Lateral Sclerosis, a motor neuron disease, is the most pejorative diagnosis to make in Neurology. In the controversy surrounding the time of the announcement of the diagnosis, and, by examining the results of 203 ALS Patients’ and their Caregivers’ questionnaires, we compare with the results of 38 ALS Centre Neurologists’ interviews. Through bringing an epistemological, ethical and philosophical analysis into focus, we argue that, in the rational multidisciplinary of the care in a rapid and incurable disease, the evolution of the clearly medical information changes the Doctor-Patient relationship into a moral injunction of presence for the Caregivers and the families. Only through the training of Doctors and a certain conception of Patient information in palliative care can the harmful consequences of such a trend be limited.
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https://tel.archives-ouvertes.fr/tel-01659917
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Nadine Le Forestier. Les Passeurs de mots. Une éthique philosophique du soin : à propos d’une enquête nationale au sein des Centres SLA de France. Ethique. Université Paris Sud - Paris XI, 2014. Français. ⟨NNT : 2014PA11T098⟩. ⟨tel-01659917⟩

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