Skip to Main content Skip to Navigation
Theses

L'ajustement parental dans les troubles du spectre de l'autisme. Etude des facteurs de protection et de vulnérabilité et développement d'un programme d'éducation thérapeutique

Abstract : Autism Spectrum Disorders (ASD) are the second most common childhood neurodevelopmental disorder. Disability is present throughout life and has major implications for the individual functioning but also on the family environment, especially on parents. As highlighted by the last French Autism Plan, it is crucial to develop support programs for parents. The goal of this research is to study the adjustment and parental needs in ASD in order to develop and evaluate a therapeutic education program. Three studies were carried out successively using a qualitative method (Study 1) or quantitative method (Studies 2 and 3). The first study aimed at identifying needs in two groups: parents of children with ASD compared to parents of typically developing children (N = 162). Support targets were formulated from reported needs by parents with ASD child in the following areas: material, information, parental guidance and emotional support. Our second study considered the determinants of parental adjustment in ASD (N = 115). The contextual variables were more involved in parental adjustment than individual measures. From a contextual perspective, the characteristics of the family environment and children school access are important determinants of adjustment. From an individual perspective, comorbidities in children and a broader autism phenotype in parents were associated with lower parental adjustment. Finally, the last study developed and evaluated the impact of therapeutic education program to parents of children with ASD (N = 40). The program consists in seven group-structured sessions. Good acceptability as well as significant improvements in quality of life and depressive symptoms was noted. In conclusion, the parents’ needs and adjustment difficulties confirm the relevance to support fathers and mothers of children with ASD. From a prevention way, it is important to early and continually assess support needs and parental adjustment. This assessment should be based on a global vision of parental status and to consider individual and contextual aspects. These elements are present in the ETAP program, which appears as a promising device to support parents of children with ASD. A theoretical model of parental adjustment in ASD is proposed from the results of the three components of this research.
Document type :
Theses
Complete list of metadata

Cited literature [255 references]  Display  Hide  Download

https://tel.archives-ouvertes.fr/tel-01531051
Contributor : Abes Star :  Contact
Submitted on : Thursday, June 1, 2017 - 11:01:20 AM
Last modification on : Saturday, December 5, 2020 - 3:17:07 AM
Long-term archiving on: : Wednesday, September 6, 2017 - 6:51:38 PM

File

DERGUY_Cyrielle_2015.pdf
Version validated by the jury (STAR)

Identifiers

  • HAL Id : tel-01531051, version 1

Collections

Citation

Cyrielle Derguy. L'ajustement parental dans les troubles du spectre de l'autisme. Etude des facteurs de protection et de vulnérabilité et développement d'un programme d'éducation thérapeutique. Psychologie. Université de Bordeaux, 2014. Français. ⟨NNT : 2014BORD0374⟩. ⟨tel-01531051⟩

Share

Metrics

Record views

948

Files downloads

15365