Skip to Main content Skip to Navigation
Theses

Amélioration de la qualité de vie des patients neuromusculaires insuffisants respiratoires : optimisation de la phonation et de la déglutition

Abstract : Neuromuscular diseases responsible of a wasting of the muscles, may involve severe respiratory failure. It is a major component of the disease, both in terms of prognosis and management. Up to now, only mechanical ventilation can compensate the respiratory disease. It is therefore required as an essential therapeutic indication and its effectiveness is already proven. Indeed, mechanical ventilation has allowed a significant increase of life expectancy. Over the past 40 years, this treatment has considerably increased the life expectancy of patients; for instance patients with Duchenne who passed away in their late teens survive now over their 30’s. Nowadays, for those people whose life has been extended, the question of their quality of life is unavoidable, especially as this longer life is accompanied by a worsening of muscle impairment and of motor disorder. Moreover, it appears that mechanical ventilation, if it provides breathing comfort, increases the level of dependency of patients and leads to the emerging psychological and even economical problems. It is essential to identify the consequences of the disease and the disability that it involves. It is then necessary to analyze the direct impact of mechanical ventilation on the quality of life of patients and especially its deleterious effects on communication and swallowing
Document type :
Theses
Complete list of metadata

https://tel.archives-ouvertes.fr/tel-01215470
Contributor : ABES STAR :  Contact
Submitted on : Wednesday, October 14, 2015 - 11:50:34 AM
Last modification on : Wednesday, October 20, 2021 - 12:24:16 AM
Long-term archiving on: : Friday, January 15, 2016 - 12:01:22 PM

File

2014VERS032ter.pdf
Version validated by the jury (STAR)

Identifiers

  • HAL Id : tel-01215470, version 1

Collections

Citation

Marine Garguilo. Amélioration de la qualité de vie des patients neuromusculaires insuffisants respiratoires : optimisation de la phonation et de la déglutition. Médecine humaine et pathologie. Université de Versailles-Saint Quentin en Yvelines, 2014. Français. ⟨NNT : 2014VERS0032⟩. ⟨tel-01215470⟩

Share

Metrics

Record views

313

Files downloads

98