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Éthique dans la recherche et démarcation. La scientificité de l'épidémiologie à l'épreuve des normes de confidentialité

Abstract : This ph-d thesis argues that there is an immanent ethic of scientific research, that participates in the demarcation between science and non-science, and should be taken into account when bringing human subjects into research protocols. This idea is based on an empirical study on the norms and practices of the use of personal data for epidemiological research. In france, along with the national commision for the personal data protection (CNILl), the law (1994/07/01) created a consultative comittee for the data processing in health research (CCTIRS). This comittee's task is to give an expert opinion about the methodology of protocol design when personal data are to be used. It admits that risks of privacy breach might occur when epidemiological protocols are put into effect, but it aims to guarantee that such risks shall be taken only when an authentical scientific justification is present. To study the conceptual framework of such a profesional evaluation enables to put into perspective the epistemological hesitations that pervade epidemiology as a dis- cipline (actually its objects, methods, and aims are particularly heterogeneous). A special attention is given to the problems of conflicts of interests and of inauthentic modes of protocol design.
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Submitted on : Thursday, April 23, 2009 - 11:54:07 PM
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  • HAL Id : tel-00298606, version 2

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Nicolas Lechopier. Éthique dans la recherche et démarcation. La scientificité de l'épidémiologie à l'épreuve des normes de confidentialité. Philosophie. Université Panthéon-Sorbonne - Paris I, 2007. Français. ⟨tel-00298606v2⟩

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