Thèse et prothèse : le processus d'habilitation comme fabrication de la personne. L'Association Française contre les Myopathies face au handicap

Abstract : The French Muscular Dystrophy Association (AFM) gathers together families whose one member is touched by a neuromuscular disease. This Association supports scientific research and helps families in their daily life. In my dissertation, I focus on the second aspect. I analyse the way the AFM faces disability and its action to include disabled people in the city. I describe three dispositives used to include disabled people into the city : the technical dispositive (wheelchair), the discursive one (theoretical model about disability, the journal of the AFM) and the institutional one (traditional institution, rehabilitation centre, adapted apartments). I show how through a long adjustment to those dispositives, the person is made up and gets new abilities. I call this process the “habilitation”. When the dispositive becomes what makes the person, it becomes a prosthesis. Describing this process, I describe both the history of the AFM (the dissertation contributes to the sociology of associations and social movements) and the journey of the disabled persons (the dissertation used the contribution of the anthropology of the body, the sociology of medicine and the sociology of disability).
The dissertation has three aims. First, I develop a sociology of disability in answering to the question : how to include disabled people in the city and how to make possible the life together ? Second, I develop a general sociology in asking the question : what is the person ? My argument is that the person does not exist by itself but is made up through the links, the adjustment, with some equipment which become prosthesis. Finally, I build a methodological and political reflection. The researcher has to find the equipment s/he needs to legitimate his/her research and to make it useful for the ones s/he has worked with. The journey I describe is not only the one of the AFM and the one of the disabled people but also mine own, the journey of my own “habilitation”.
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Sociologie. École Nationale Supérieure des Mines de Paris, 2001. Français. 〈NNT : 2001ENMP1019〉
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Submitted on : Tuesday, August 8, 2006 - 4:53:44 PM
Last modification on : Thursday, December 6, 2018 - 1:53:31 AM
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Myriam Winance. Thèse et prothèse : le processus d'habilitation comme fabrication de la personne. L'Association Française contre les Myopathies face au handicap. Sociologie. École Nationale Supérieure des Mines de Paris, 2001. Français. 〈NNT : 2001ENMP1019〉. 〈tel-00089008〉

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